Community stories: 27 August 2024
Ten years ago, when Alex was diagnosed with Coeliac Disease and two other autoimmune conditions, she quickly learned how tough it was to find safe, gluten-free food – especially in a regional town. But it wasn’t just about food; explaining her condition to others was a challenge too.
Her personal experience sparked the creation of “Jack the Silly-Yak,” a character initially brought to life in a children’s book to help young people understand Coeliac disease in a fun and approachable way. Jack the Silly-Yak soon became a live, interactive musical and imaginative play, performed to children in regional NSW.
From this work, Alex knew there was more to be done to make Jack the Silly-Yak more accessible to kids with chronic illnesses in other regional communities.
With the help of a $6,330 grant from FRRR through the Sally Foundation Trailblazers Development Fund, Alex was able to take Jack the Silly-Yak to a whole new level. Partnering with the Hunter Business Centre, they developed The Giggle and Learn program. This online program includes three music videos and three seven-minute episodes starring Jack. These episodes mix music, craft, cooking and community outreach to create something fun and educational for kids and their families. Plus, there are downloadable resources so families can easily access everything they need to learn about living with Coeliac Disease and other chronic illnesses.
The outcomes of the video program have been remarkable. Alex is thrilled with how well the program turned out, saying, “I’m so proud of the quality of this program and how it gives the same level of fun and information that my live shows do.”
The Jack the Silly-Yak grant project has successfully expanded the reach and impact of Alex’s original vision, ensuring that kids with chronic illnesses are not only seen and heard but also empowered and supported, no matter where they live.
The online program has made it possible for families across Australia to access critical information about living with chronic illnesses. Whether in a city or a remote regional town, children and their families can now learn about Coeliac disease and other conditions in an engaging and easily understandable format.
Through the project, Alex has been able to develop meaningful relationships within the gluten-free community. These connections have helped to strengthen the message and value of the program, ensuring that it resonates with families and communities alike, as well as helping to grow the audience and therefore increase awareness and representation of both Coeliac and non-Coeliac kids.
One of the most rewarding aspects of the project was the opportunity to support regional creatives, by providing paid and fulfilling work to four filmmakers and artists. Supporting local talent is a key focus for Alex, and she is committed to continuing this approach in future projects.
